Tag Archives: caregiver
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Why do persons with Alzheimer’s act so odd? Why are the behaviors so disconcerting and unsettling to us?
Why was I so bent of shape for so long? Why didn’t someone I was venting too ask me, Why are you allowing these little things, the little behaviors, to drive you nuts?
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This room did not happen overnight. It took me a long time to begin to transform what was a bare and institutional feeling space into what it is today.
What does it feel like when I walk into my husband’s room in a residence where he has been living now for over two years?
Believe it or not it feels okay as I cross the threshold into Aristides’ Alzheimer’s world. It’s like entering a place that is safe, a room that is now his home, and mine too.
When it’s time to leave (I never use the good-bye word) Hugo jumps off the bed, I gather up what may need to be taken home, give my husband a kiss and let him know I’ll be back very soon. I put on some music and make sure he has things to play with in front of him. I begin to walk down a long hallway toward the elevator. “Elevator Hugo.” Words that signal we’re leaving Arisitdes’ world behind.
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One of the most difficult tasks an Alzheimer’s caregiver faces is the development of a new set of communications skills. Sooner or later the caregiver needs to come to an understanding that the way they have communicated in the past, before Alzheimer’s, won’t work in a world filled with Alzheimer’s disease.
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True confession from an Alzheimer’s activist, wife, caregiver.
To be a caregiver isn’t an easy task. I am sure anyone reading this forum knows that by now. However, the issues aren’t just the actual ‘taking care.’ In addition to the difficulties of care giving, I think many of us struggle with the emotional issues of guilt and frustration, and, quite truthfully, never really knowing if we are doing the right thing…
Original content Carol Blackwell, the Alzheimer’s Reading Room
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